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A "SPECIAL NEEDS" PERSON IN THE FAMILY

In last month's commentary the focus was on the economic problems faced by those who support physically, mentally, or emotionally disabled persons, and the importance of assessing and qualifying the resources available to solve those problems. Here, the emphasis will be on practical solutions that supplement available government assistance and enhance existing financial security. Please feel free to share this information with others.

Trusts: There is no better vehicle for assuring management, protection, and dispositive assistance for a disabled or other special needs person than a well-designed trust. See The New, New Book of Trusts (510) 024-0515 or Rajut, "Planning for Families with Disabled Members" audiotape (A9834) available from Million Dollar Round Table at (800) 879-6378, for expanded information in this area.

Through a judicious choice of trustees, trusts can provide the needed flexibility - or the rock solid rigidity. If drafted properly, the trust provisions can continue to be responsive to the changing needs of the disabled beneficiary. In addition, a trust can continue for the lifetime of one or more beneficiaries - and beyond that point for generations. There are several states that allow trusts to last perpetually.

Like heads, two trusts are often better than one. The first trust would be a non-necessaries trust that would be designed to meet only those financial needs to enhance the disabled person’s quality of life that cannot, or will not, be provided through governmental or private programs. The second trust would be used only if, or when, or to the extent a financial gap existed between the total of what the government and private programs together with the first trust provide, and the needs of the disabled person.

At least two co-trustees should be considered, one a family member, relative, or friend and the other a bank. The combination would offer personal concern and guidance, as well as professional management, investment, and security of the financial aspects of the trust. It is imperative that at least two and preferably three or four back-ups be selected for each trustee; because it is highly probable that at least one named trustee (or successor trustee) over a long period of time will die, become disabled, move away, or for some other reason be unable or unwilling to serve or continue to serve.

Life Insurance: If there is sufficient cash or other assets, many problems can be solved. Absent sufficient cash or other assets, many problems will be insolvable. Without question, life insurance is the single most effective way to assure the significant financial security necessary for dependants who require perpetual care. It is also the most certain means of providing peace of mind to a disabled person's parents as to how their child's expenses will be paid after their deaths. The "instant estate" created by life insurance proceeds may be the only way the family of a disabled person can afford to provide adequate security, if governmental care is either not desired, or the disabled person is, or becomes, ineligible for such support.

Because it is essential that the coverage be available whenever it is needed, some form of permanent life insurance is typically indicated. The cost of term insurance rises sharply at the very ages where the insurance is most needed: as the risk of the parent's death (and the consequent cut-off income to the disabled person from that source) increases. Since the need to provide continuing financial support for a disabled child can easily outlive the child's parents, term insurance is typically inappropriate.

Do not overlook the need for insurance on a parent who does not work outside of the home, but is the primary caregiver of the disabled child. The income-tax free proceeds (even if it's only a modest amount) will alleviate some of the stress brought on by the loss of the caregiver parent, and provide the means to hire someone to look after the child.

Life insurance on the parents (or grandparents) may be used to "compensate" healthy siblings of the disabled child. The insurance proceeds may be used to "replace" the money or resources expended for the care of the disabled child that otherwise would have been inherited by his or her healthy siblings.

Certainly, before switching jobs or starting a new business, parents of a disabled person must give extra consideration to life and health insurance coverage. Check the "pre-existing condition" provisions of the health insurance plan, and look into MERPs (Medical Expense Reimbursement Plans).

Some Additional Thoughts: Nowhere is the need for estate and financial planning more urgent or important than when the problems include providing financial security for a physically disabled or other special needs person. Yet parents of such children are often so preoccupied with day-to-day crises that they sometimes have difficulty allocating the time, energy, and economic resources to plan for the future.

The need for continual updating of information, plans, and tactics is essential. An annual "Financial Fire-Drill" - a meeting with professional advisors to review goals, resources, and plans of action and the staging of a dry run - can make an incredible and invaluable difference to the overall emotional and financial well-being of the family.

AS ALWAYS, PLEASE FEEL FREE TO CALL TO DISCUSS THESE OR OTHER ISSUES OF INTEREST!

Phone: 781-893-0909
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